Thursday, July 29, 2010

diagnosis

Woooooosh : may the flood gates open.

In case you haven't noticed I've been having a little bit of a difficult time this summer. Until now. Yep, now I'm drowning. That awful feeling when a wave catches you off gaurd, you lose your footing, and don't know which end is up. You just keep on swimming until finally you hit the bottom. *bloop bloop bloop* Well, later last breath of air. Yep, I'm drowning.


How about I explain a little more....
After starving all day Sunday I had to drink this wonderful cherry drank [barffff... i will never enjoy another cherry vodka drink again]. Everytime my mom walked into the room with another 10oz I told her she was a satin woman. That made her laugh ... didn't have quite the same effect on me. So, got all 64oz of that nastyyyness down and enjoyed the effects of that until 2am.... wonderful.
Monday : Up bright and early off to the doctors. starvingg like a marvin and *flick* there goes the switch... the one that controls my nerves and anxiety. For the past few days its been firmly in the off postion. I've been cool, calm, and collected... for the most part. Perfect timing for a panik attack as we are pulling in front of the vallet guy. he is giving me a very odd look as I am in the front seat, hyperventalating, with my head between my knees. AWESOME. After what felt like forever I convinced myself it was time to get my shit together and *flick* there goes the switch again. convinient.
Get called back, put on the stylin hospital gown, and the super warm non-slip socks [ I stole took them home witl me ;)  ] The dumb-ass lady who called me back had marked me down as an upper and lower hmm NOOO ! Thank god I left my book in the waiting room or else I wouldn't have been looking at the chart and noticed... i mean i'm sure that wouldda been a ton of fun right? Had some waterworks on and off as reality continued to seep deeper and deeper beyond the walls of "not thinking about it" that I had put up. Mmmmm then the happy drugs kicked in. In this beautiful world of la la I got some peaceful sleep for the first time in a while. It ended much too quickly.
*Snap* back to reality. Diagnosis : Ulcerative colitis in all 6ft of my large intestine. What does this mean? First and foremost, it's a forever kind of thing. Next, it is not in my small intestine which means it is not Chrons... just Chron's little brother. For being Chron's little brother it is the worst case senario... all 6 feet which means the future it will most likely get worse [ cross that bridge when i come to it ] further drilling the forever thing into my head

*inhale*exhale*inhale*exhale*inhale*exhale.  WOOAAAH. ugh. wtf?! really. okay. i got this... i think.
This means soooo much is about to change. *bloop bloop bloop* there goes that last breath. gone... laterrrrr. i really don't think I can take much more.


Hah, I act like I have a choice. I'm scared... seems to be a trend right now.  Things are changing quickly and I no sooner get my footwork when the rug gets pulled out from under me again. It's okay. Life Lesson : Do something everyday that scares you. That means tomorrow I will awaken from my slumber to the first day of my "rest of my life" medication. 2 pills in the morning and 3 at lunchtime. it could be much worse, so thats my silver lining? ooooh, and i gotta be extra special careful when consuming alcohol because my liver... yeah it might hate me some day. liver disease, kidney disease, colon cancer, OH MY ! again, we shall cross that bridge when we get ther. Better buckle up ladies and gentlemen its going to be a bumpy ride. =(








...to another day down

Sunday, July 25, 2010

Jello

It's been a while. In a way I have nothing to say. At the same time, I have EVERYTHING to say.

There have been no serious developments in my life. Things remain the same. That can be taken as a good thing or a bad one. Things have not gotten any better and on the bright side they haven't gotten any worse either. My cousin is still fighting for her life, she's putting up a good one. Fighting like she's Ali in the 12th round going for the knockout, I just don't know if she's strong enough to pull it off. It's a scary thought but it is much easier to come to terms with the worst of things and hope for the best than to have the rug pulled out from under you. * deep breath * no matter which way the cookie crumbles things are going to be okay, i have to believe in that.

I had a momentary lapse from reality which was nice. I spent the weekend with friends. I knew I missed them but I didn't realize quite how much until we spent hours laughing and talking and pulling our usual shenanigans. For one weekend, life was good. I smiled, a genuine smile that wasn't just painted on my face to ease the worries of my mother. I laughed, a heart filled laugh as I relaxed a little and felt my own worries slowly fade away. We laid on the beach and played in the water. "Over, over, over. NO ! UNDER!! " ooh, that certainly was fun.

While I was lost in all of this  life indeed was still going on. I was quickly snapped back to reality to take care of some business. Good ol' Gwynedd decides that I am no longer in financial need of the Gwynedd Mercy College Scholarship.... *tttffff tffff tffff * thats the sound of $4,000 flying away. Well, LATER money. Awesomeeee. sweeeeet. this is just efffin swelll !!!! ugh, I'll figure it out. I really could join a circus with my amazing juggling skills.

At this particular moment I'm lying on the couch STARVING because of this stupid all liquid diet. Waiting to shit my brains out. Doing all of this to find out tomorrow if life as I know it will do a 180. Yeah soo this will be fun? "Its the beginning of the end of your problems" thanks doc, that really eases my tension. When I finally come around I have to go to the cafeteria get something to eat and go get blood work done. exactly what Im gonna wanna do. eat shitty cafe food after 30 hours of not eating and then go upstairs to pass out. yes, passing out is inevitable. There will be needless and blood involved. it's a fact of life and I'm okay with that... I guess. is it sad that last time I was thinking about edward cullen? HAH i'm so lame.

But, all of the bullshitting aside. I'm scared. I dont know what to make of any of this. I know that I must wait for the proper diagnoses even though the doctor knows, my dad knows, my family knows, and i know what it is thats wrong with me. I guess the waiting is what sucks.

well, lemon jello is calling my name. I don't think I will ever be able to enjoy a cup of jello again after today. that is truly a shame because it's a snack i use to enjoy.


...to another day down

Friday, July 9, 2010

Letter.

If I fall asleep then its over. A year past by. If I close my eyes now what will I see when I open them. You will still be gone. If I let my self dream I won't want to wake up. Reality sucks. If I think to much I might go crazy. Maybe I'm already there. If I were to go back to the last time I saw you I would never let go. My heart wont let you go.


You will be my Tommy Boy forever. You were my guy. The one to go to when I needed someone the most. Everything feels like it has fallen apart. I would give anything to hear your voice again, to listen to your words of wisdom, just to ignore them when it came time to apply them. I still can't believe that your really gone. Your absence has made part of my life feels so empty. You cross my mind everyday, with a song on the radio, someone quoting P'n'S, eating at our lunch date place. There are times when a scent brings back the memories of sitting in your old Saab passing the time, "shooting the shit" as you would say. It's strange to think about how much has changed. These memories are bitter sweet. I miss you. See you soon
--Anna Boo






To another day down....

Wednesday, July 7, 2010

Year

I wish I'd have died in your arms the last time we were together so I wouldn't have to wake without you today. I still have these memories, but we'll never see what we could have been. Remember when we talked about where we'd be a year from now? Remember when you held my hand like you'd never let it go? Remember, cause that's all you can do. We'll never make another memory.





A year ago.....
“Oh God, he’s calling you again!” Kristen informed me as I was kicking around the soccer ball with my friends Even, Stu, Alex, and Mike.

"Let it go to voicemail,” I yelled back, “I’m in no mood to deal with his shit.”

“Haha, whatever you say,” Kristen laughed back at me.

It was a picture perfect day on the beach, the sun was shining, the water was warm as the white tips of the waves crashed along the sand. It was the kind of day that truly made one appreciate the summertime, it was carefree and effortless. I hated having to climb back into the blisteringly hot car to head back home. Kristen and I rolled the windows down and created a ruckus yelling at the car full of guys who had met up with us on the beach today. The car was driving next to us as we crossed over the two lane bridge out of Ocean City. We were making faces at one another and loudly singing the song on the radio. My phone rang again. I looked down to see who was calling. It was him again, Martin. A kid I had known for sometime but after he turned into a stalker I avoided him at all costs. Six phone calls in a matter of 3 hours… something had to be up. Despite my better judgment I answered the phone. I had to yell over the wind coming in through the open windows.

“Hello,” I yelled into the phone as I attempted to crank up the window. My how I wished Kristen would invest in the luxury of power windows.

“Anna?” The voice on the other end of the phone asked.

“Who else would it be?” I replied back with an edge in my voice that let him know his call wasn’t welcome.

“I have to tell you something. What are you doing now?”

“I’m on my way back from the beach with my friends. What do you want?” I answered back. I wanted nothing to do with what he had to tell me. As far as I was concerned nothing he could say to me would be of any importance.

“Are you driving?” he asked.

"No, my friend Kristen is.” I answered him. I was really annoyed with all of these questions. I did not want this phone call to ruin such a great day with my friends. I just wanted to hear what he to say and then get off of the phone. He said something in a voice much lower than he had been speaking before. “What?” I said back into the phone as I was signaling to Kristen to roll her window up as well. He spoke again and I heard what sounded like, “J-Doc ….” But the end of the statement was muffled. I couldn’t imagine what he had to tell me about J-Doc and why it would be so important. He was a kid from the neighbor hood that I barely knew.

“Anna? Anna, did you hear what I said?” Martin asked.

“No, sorry the window was down. I could barely hear anything.,” I told him, “What about J-Doc?” I asked him to clarify his statement.

“He died this morning in a house fire.” He told me and I could hear in his voice this was very bad news. The tone of his voice and what he was telling me some how didn’t fit together. Granted, a kid my age passing away from a house fire was a tragedy, especially so close to my own home. But, there was no udder importance for me to be told this. I hardly knew Jim, we had been at a few neighborhood gatherings together and that was the extent of our friendship.

“J-Doc? Like Jim Docherty?” I asked Martin, clearly confused by what he was telling me.

“No Anna. Tom. Tom Doherty.” He answered my question sounding a little irritated at my confusion but still very sympathetic. All at once everything made sense. Why he had called me 6 times that day. Why it was so important that he tell me right away. Why his voice was so sympathetic. Why he had asked me if I was driving. Everything made sense. I have no idea how much time had passed that I sat there in silence with my phone held up to my ear. I was putting all of the pieces together in my head. Tom Doherty, not J-Doc, had died this morning in a house fire. One of my best friends. A kid I had immediately become friends with my freshman year in high school to only have our friendship continue to strengthen as we went through our 4 years of Paul VI together. An amazing friend who I had managed to stay very close with even though our freshman year in college had us four states apart. Tom had died. My Tommy boy was gone.

“Anna… Anna… Anna are you there?” Martin’s voice was muffled, like I was swimming underwater and he was calling to me from the surface. “Did you hear what I said?”

“Girl, what the hell? Are you alright?” I heard Kristen’s voice, it seemed to be a hundred feet away and not right next to me. Then I heard this blood curdling scream, a scream that you would hear as if someone were being dragged off by a serial killer. It was the kind of scream that pierced your eardrum as it reverberated through the air. “OOOH MY GOD, OH MY GOD!! WHAT’S WRONG? WHAT’S HAPPENING?” I heard Kristen’s voice yelling over the scream. The blood curdling, eardrum piercing scream was coming from me. I hadn’t even realized I opened my mouth. I gasped for air, only to realize that my chest was too tight to allow my lungs to expand. My hyperventilating at some point had turned into sobs and I could feel the warm tears rolling down my sun kissed cheeks as the reality that I had just lost one of my best friends was beginning to sink in.

“Tom. Tommy boy. My Tommy boy, my Tommy boy. No, this can’t be happening,” I was mumbling between the sobs that seemed to be controlling every inch of my body.

The next amount of time was immeasurable; it may have been ten minutes or a span of ten hours for all I knew. At some point we pulled over to the shoulder of the road, Kristen must have signaled to the other car for them to do the same because I heard her, over my sobs, talking to Mike. The next thing I knew, the passenger side door was opened and Mike reached across to unbuckle my seat belt. I wanted to say something, to vocalize the thoughts running through my head but I couldn’t control my crying long enough. Mike scooped me up out of the seat and held me like a child tight against his chest. He called to Kristen to open the back door. He climbed into the backseat, swung my legs over his lap, and wrapped his arms around me. I buried my head in his chest and continued to cry as he stroked my hair. I remember Kristen and Mike’s attempts to cheer me up. I remember trying to get a grip, to pull my self together but every attempted failed, throwing me back into hysterics. I remember trying to imagine what all of this meant. I remember trying to think back and recall memories we had, it hurt too much.

The rest of the ride home is a blur, it seemed to take hours. As we pulled up in front of my house, Mike picked my head up out of his chest. He pushed my hair back off of my face and wiped my cheeks and eyes with the bottom of my shirt. “Don’t move,” he said as he slid across the seat and out the door. The slam of the car door behind him sounded like a cannon going off, it made me jump. The door to my left swung open and again his arms reached in to pull me out.

“I want to walk,” I protested. He set me down and as my legs wobbled under my own weight his arm wrapped around my waist and he pulled me close to him, supporting me. When we got to the front door Kristen was already there talking to my grandmother, explaining to her what happened I assume. She gave her a kiss on the cheek and then one on mine, there was an exchange of arms and my grandmother was now supporting my weight. She walked me up the stairs and helped me into bed before turning to leave the room. A few minutes later my grandmother returned with a glass of water and a cold wash cloth to wipe down my face. The glass of water remained on my night table.







Thursday


Friday


Saturday


Sunday, 2am
I woke up screaming. My face and pillow soaked with tears. My chest was pumping in and out quickly as I tried to control my breathing. I threw my feet to floor and ran to the bedroom door, I opened it to find my mother standing on the other side, looking frightened but as though this were a routine. I pushed past her to the kitchen. I checked the stove, all the burners were off. I ran downstairs; both the candles had been put out. I collapsed to the floor, put my face in my hands and sobbed. This was the fourth night in a row I woke myself up in a panic, afraid the house was going to catch fire.

This routine continued for the next five months. After a week or two my mom no longer waited on the other side of the door. I moved back to school the end of August and although I was still woken up by the too familiar nightmare, I no longer found the need to get out of bed. The nightmare still comes, less frequent and much less potent than before, but still its there as a constant reminder of how everything can change in the blink of an eye.



I miss you, I miss your smile and I still shed a tear every once in a while.
And even though it's different now you're still here somehow
My heart won't let you go <3

Tuesday, July 6, 2010

Quote

"I'll plant this seed of anger and sadness. In it's place a tree will grow and I'll climb it to escape this eternally damned place."

I've had a bad string of days. Just waiting for the next bad thing to happen. This is exactly like last summer. There is no light visible at the end of the tunnel. I'm struggling to keep up this facade. I've never felt so alone. People care, I know they do, but I don't have the energy to tell them what's wrong. I have this hole in my chest that won't go away. I have happy moments where I'm laughing and for that one split second everything feels okay. Then I come back to reality. I'm constantly in a "dejavu" life. Reflecting back on "the dark times" or reflecting back when things were once happy. Last summer when I was going through these "dark times" I had someone there. Granted I relied on him too much, pushing him away in the end, I still had someone there. Although this is scary, I know that in the end everything will be okay. I will be stronger as a result of this because for the first time in my life, I'm getting through it alone. Sadly however, this is the only optimistic view I have on the current situation but its better than nothing.









...to another day down

Sunday, July 4, 2010

Scrabble

Bucket list:
#20: Beat my mom at Scrabble  *Check!*


Beat her at an impromptu game last night. Score: Me-155 Mom-115
I used 4 triple word scores... CLUTCH


it was a small triumph, but it felt nice.

Saturday, July 3, 2010

Fourteen

I think I'm fooling everyone with my cheap smile and "yeah, i'm okay." ...then I close the door and I'm washed away by all of the things I've been hiding. By all of the emotions I've been pushing away. What the hell happened? Everything was going well. I had finally put my life back on track after being derailed a year ago and now what? I have to come full circle. I have to slip back into the darkness that once control every thought I had? THIS ISN"T FAIR. She is fourteen, god damn it! Fourteen years old. She hasn't even made it to high school. In one week she went from being an athlete, good student, loving daughter with an amazing personality to a fourteen year old girl, lying in a hospital bed under a chemically induced coma who is dying!! The cancer is... terminal. I still can barely wrap my brain around it. The cancer that they found on pure luck... is going to kill her. It is going to kill her unless we have some kind of miracle.

A miracle. If I hear one more god damn person telling me to pray for a miracle I sware to god I will snap and I will kill them. A miracle..... you really expect me to believe that there is actually someone up there? Even better yet, you really expect me to believe that there is actually someone up there who might actually be on my side. No!! I am so sick of believing, and hoping, and praying. What has it given me.... how far has it got me? My cousin is fourteen years old and dying of medulloblastoma, a tumor on her cerebellum. my grand mom is barely holding it together threatening to break at any given moment. my aunt rae is dying of pancreatic cancer, hospis is at her house right now... just waiting. And my father, who is finally getting back onto a normal schedule, might be switching to night work. Every time I turn around another piece is falling to the ground. I can't do this again. I'm being held together right now with some scotch tape from the last time I shattered to a thousand tiny pieces. Any day now, I'm going to crumble again. I'm just waiting... waiting for the next bad thing to happen, holding my breathe every time I hear the house phone ring, tossing and turning in my bed at night afraid to close my eyes. Although falling asleep means that I've made it through another day whole, waking up means there is another day ahead of me that I have to struggle through.


I can't do this again.





I really can't do this again.










to another day down...